Ep. 14: Down Syndrome Regression Disorder

Alliet is a 21 year-old individual with Down Syndrome who has volunteered to share his story along with his mother in this episode. Stacey and Alliet are learning about Down Syndrome Regression, a little-known condition that results in a significant change in mental acuity around Alliet’s age. They are advocating for more research and education about this condition, as well as discuss the conundrum they’re currently in as they figure out next steps, now that Alliet is no longer eligible to receive services at school.

Alliet is also one of 5 million people in the United States who cannot rely on speech alone to be heard and understood, so for the first time, we are recording this podcast as a video as well! The video format is available on our YouTube channel.